The Picture Comes Into Focus for Patients Suffering with Rare Eye Disease


Access Your Copy of the White Paper

Verana Health and Datavant collaborated to showcase how linking curated claims and registry data from electronic health records can help shed light on full disease burden and healthcare utilization.


This white paper includes:

  1. The benefits of using registries and linked real-world data for rare disease research

  2. How tokenization technology was used to identify matching patients between two data sets to create a combined data set

  3. How combining data sources can help complete the patient journey 

Complete the form to access your copy.

Please do not send any Protected Health Information (PHI) when submitting this form. This form is not encrypted and it is not a suitable method for transmitting PHI. Any PHI sent to Verana Health via this form is deemed to be authorized by the subject of the PHI.

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